Wednesday, August 19, 2009

We've moved....



blog has moved to diecancerdie.wordpress.com

You can bookmark this one:

http://diecancerdie.wordpress.com


Wordpress is a bit more design oriented with a more of an active development lifecycle. This blog will remain here, but all of the posts, comments and other content from it have been imported to the new blog. NO new posts will be added here.

Thanks,
Ted
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Thursday, August 13, 2009

Thank You, Thank You, Thank You

It's been a blazing fast five weeks since I got the all clear from Dr. Motzer. Everything that had been put on hold for this cancer battle roared back to the foreground. Work, socializing, normal exercise and activity...they all returned to center stage. On the other hand, cancer stuff (like this blog) were neglected almost immediately.

Not surprisingly, the question I hear the most often is: "how are you feeling?" The answer is that I feel great! My hair is finally back, and I only have one niggling remaining symptom. Otherwise my energy is more or less normal, my fitness level has improved, and I even got some sun. It is/was a big shift going back to work after months off, but it was nice to focus on something else besides my health.

But enough about me. This post is really about all of you.

I really don't know the words that can express how important all of you were in helping me maintain the right attitude during this whole thing. It's just something you have to experience to truly understand, although I certainly don't wish it on anyone. But let me just say this, it is of critical importance and you all delivered it in bountiful quantities.

A few things in particular amazed me. For example, many of you let us know we were in your thoughts and prayers. But not stopping there, many of you mobilized your own personal support networks to think about us and pray for me on your behalf, creating an almost viral and exponentially growing population of supporters. That's just a powerful feeling to think about; such a large number of united voices working on your behalf. These thoughts absolutely entered my mind during some of the darkest and most difficult times of my treatment.

I do want to mention (in no particular order) just a few more examples that I haven't blogged about before. (I won't be mentioning Renee. As I've tried to say in other posts, words really can't describe her contribution to this whole effort. I simply would not have survived without her.)

  • Carrie; your gift was awesome. It was useful, creative, personal, beautifully presented, unique, generous. I really felt that you knew me deeply and cared deeply.
  • Rachael; you didn't let the distance slow you down one bit. You did a gazillion things; each one with such care and kindness, but I especially valued the trip you guys made back east to spend at home with us. It was such a lift right when I was in the thick of it.
  • Dad; you really threaded the needle each time we were together or spoke; being strong when I needed you to be strong, kind when I needed kindness and provided normality and distraction when I needed that. You just knew what I needed better then I myself did. Amazing.
  • Dave Green; perhaps you're surprised to be mentioned here, but after that worst first week, with chemo, the family stomach bug, and all the other crap, very early on April 11th I checked Facebook. You had posted a clip of "here comes the sun" in response to my status of the night before. I played it and wept like a baby. Deep, cathartic tears alone in my kitchen where I sit again now. At the end of that song the sun rose, literally, and a turning point was reached. From that moment on, my family all started walking out of the dark woods, instead of deeper in. That song is forever representative of that moment, and perfectly so.
  • Emi; you made sure to come and see the first time I had cancer and I was miserable from my surgery and then you brought everyone here again the second time around. That and your gift of just the right words whenever I needed them, which was often.
  • Mom; you consistently put me first even though you had to be suffering more then you burdened me with during this whole experience. As a dad myself I can guess a bit but I know that wasn't easy.
  • So many came to celebrate, with short notice, in the middle of the busy summer when I got the all clear; that was awesome too.
There are a million more examples, small and large that I could share. When I see any of you, I will be telling you how you personally impacted me, because you all did.

My feeling is that I survived because I have more work to do. I consider part of that work is to rebroadcast to others all the kindness conveyed onto me during the last five months. When I do that, it will be in your honor, for all the support given.

A note on this blog; I will be posting the results of my surveillance for at least for the next two years, but that means posts will be approximately monthly.

I am also changing blog providers. In fact this blog is currently mirrored and in beta at http://diecancerdie.wordpress.com

So please stop by from time to time, but there is certainly no need to check Die Cancer Die more often then that.

(Also, if you're a twittering type, I have been twittering occasionally since mid-2007 but will be doing so more actively now, on my new account: http://twitter.com/neigere .
I will be following more then tweeting but that's all the more reason to let me know you're on twitter.)


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Tuesday, July 7, 2009

Remission Mission

It's been a few days since I found out my tumor was gone. I returned to work yesterday; a big transition from the life I had gotten used to. It was a big transition for Renee too. We had become an efficient family unit. When I wasn't having treatment and I was feeling decent, we took turns with the daily tasks, a well oiled nuclear family unit.

The news that I am in remission continues to sink it slowly. I will never be return to my pre-cancer life. This seems like an obvious statement but it is something I think I did after my initial diagnosis and surgery. At that time I "only" had a 15% chance of recurrence and in my mind, body and psyche I was done with cancer. Of course this was only to find out a year later that I was part of that unlucky 15%. That mental state made my second diagnosis as shocking as the first. So, as a result, I'm taking this "all clear" message with the proverbial grain of salt. I'll really feel relieved in two years, after which the chance of recurrence lowers to close that of the rest of the population. (The most likely location of a third recurrence is unknown, so it's really like the rest of the population.)

In addition to this mental state, I will also have a PET scan and CT in October. This is to confirm that the changes in my armpit and neck lymph nodes that showed in the CT scan have resolved as expected. The conclusion is that those lymph nodes were irritated by the chemo, so they'll be looking for those to have diminished. (It makes sense because the lymph nodes play a key role in the human immune system, and chemo has a major immuno-suppressive effect.)

In the short term, I still have a handful of small but annoying remaining side effects. The most apparent is my shortness of breath and lightheadedness. For example, after I go up a single flight of stairs I have to stop and lean on something as my heart goes into overtime. Or after sitting for a long time I stand up and stretch, I get an intense head rush where I feel like I'm going to lose my balance and usually grab onto something.

Both of these can be explained by my shortage of red blood cells, which carry oxygen from the lungs throughout the circulatory system. Less RBCs, less oxygen to the brain and muscles. In a couple weeks my bone marrow should have reasonably replenished my RBCs, but it'll be three or four months before I'm at my normal pre-chemo counts.

It's amazing how life returns to normal during the minute-by-minute rush. But it's during the rare quiet times that I'm reflective of the experience. Ironically I'm expecting some depression sometimes in the next few weeks or months, as I felt a couple of months after my initial diagnosis. We'll see.

I also want to share a link that some of you have sent to me. There's some truth to it.


Regarding this blog, I have a few more posts in me. I have a few people to thank ;-) Stay tuned for a bit more.
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Thursday, July 2, 2009

ALL CLEAR

Dr. Motzer says my scan results are what you'd hope to see, and no surgery or further chemo is required.



He recommended another ct/pet is 3-4 months for the armpit but felt the chemo just irritated the lymph nodes.



More later....
(Posted from my mobile phone)
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Big Day

Lymph node is now 0.8 cm by 0.8 cm (1.0 cm is normal) with no abnormal sugar uptake. Previously the tumor was absorbing 6X what normal tissue requires, to fuel its growth. (All this info is only from the ct and pet report. We haven't seen motzer). I did have some enlarged lymph nodes in my neck and armpit, but they don't look cancerous. So far good news but we're waiting for motzer's opinion.

(Posted from my mobile phone)
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Waiting now in an exam room. Suddenly a bit nervous.

(Posted from my mobile phone)
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Waiting, relaxed, resigned to my fate. Waiting room is relatively empty. Could cancer be on vacation?

(Posted from my mobile phone)
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